April 17, 2026 – World Hemophilia Day
The Unified Health Day "World Hemophilia Day" aims to raise public awareness about hemophilia, promote early diagnosis, and ensure access to treatment. The events held as part of the health day also help to draw attention to the fact that with proper treatment, people with hemophilia can study, work, and live fulfilling lives.
Hemophilia is a congenital blood clotting disorder that manifests as a deficiency in blood clotting factor VIII (FVIII) (in hemophilia A) or factor IX (FIX) (in hemophilia B). In other words, it is an inherited blood disease. It has been established that women, without being affected themselves, can carry hemophilia from one family to another.
Hemophilia is characterized by excessive bleeding, whether from external, even minor injuries, or internal bleeding into tissues, joint capsules, etc. An injury that causes almost unstoppable bleeding can be extremely minor.
Individuals with hemophilia have no choice but to learn to live with this disease and accept that their bodies require special precautions and careful handling every day.
Hemophilia is diagnosed by various specialists. First and foremost, it is necessary to consult a pediatrician, who can then refer the patient to a hematologist, neonatologist, geneticist, and others.
The diagnosis is made after a series of laboratory and genetic tests.
Hemophilia is an incurable disease.
It would be irresponsible not to explain to parents of a child with hemophilia how dangerous this disease is. Nevertheless, they should not think that their child is lost. Today, individuals with hemophilia have the opportunity to lead an almost normal life.
In addition, proper physical and psychological upbringing is necessary so that people with hemophilia do not become outcasts in society due to their inability to cope with everyday life.
Hemophilia Prevention
Involves providing medical genetic counseling to married couples with a burdened family history of hemophilia.
Parents should keep in mind:
- Children with hemophilia should always carry a special passport indicating the type of disease, blood group, and Rh factor.
- Children with hemophilia require a protective regimen, injury prevention; dispensary observation by a pediatrician, hematologist, pediatric dentist, pediatric orthopedist, and other specialists; observation in a specialized hemophilia center.
State Institution "Rossonsky RCGE", April 2026.